Registration is now open for JP’s 5K Fun Run!!
Taking place September 27th – October 4th
In an effort to ensure the health and safety of our community during the COVID-19 pandemic, we will be conducting a Virtual Run for JP! Lace-up your running shoes and complete the 5k race at your convenience anytime between September 27th – October 4th. You can complete the race in any fashion of your choosing, such as by running through your neighborhood, using a treadmill, or walking!!
Most recently, this event has been held by the Nick’s Fight to be Healed Foundation, which was formed after the death of then 13-year old Nick Cammarata after succumbing to Acute Lymphoblastic Leukemia (ALL). The foundation supports pediatric cancer patients and their families, looking to improve their quality of life during their fight and support those around them. Last year, they turned the reins for to the annual September 5k to JP’s Team, the same baton they took from the Catie Hoch Foundation 10 years ago.
In addition to supporting our efforts to raise awareness for Niemann Pick Type C, your participation and donations to JP’s Fun Run will also include a commemorative item and a raffle entry for $50 – $100 gift cards!!
Funds that are raised during JP’s Virtual 5K Fun Run will benefit Niemann Pick Type C and The Melodies Center for Childhood Cancer and Blood Disorders at the Bernard & Millie Duker Children’s Hospital at Albany Medical Center.
We also want you to share your week with us by using our hashtags #JPsFunRun2020, #RunningforJP2020 #FriendsofHonsingers2020 !!!
Ways to Donate
- Register via the link below!
- Send a donation via Venmo @TeamJP-FightNPC
- Send a donation via PayPal to firstname.lastname@example.org
- Send a check, payable to “Friends of the Honsinger’s” and mail to: 13 Rosemary Court, Clifton Park NY, 12065
REGISTER FOR JP’s FUN RUN
THANK YOU TO OUR SPONSORS
What is Niemann Pick Type C (NPC) Disease?
Niemann Pick Type C (NPC) disease is a rare neurodegenerative disease that primarily strikes children before or during adolescence. NPC is an inherited cholesterol metabolism disorder. Symptoms can include deterioration of memory and balance, lung and liver failure, delayed motor development, and seizures. The disease usually appears in early childhood, leading to neurological problems that there is no cure at this time. This disease is known as childhood Alzheimer’s. While there is not yet a specific treatment for NPC, supportive therapies are available. These include medications to control seizures, abnormal posturing of limbs, and tremors. Physical, speech and occupational therapy are also used to help with daily functioning.
Get to Know JP’s Story
The Melodies Center for Childhood Cancer and Blood Disorders at the Bernard & Millie Duker Children’s Hospital at Albany Medical Center treats and evaluates a variety of patients, some with blood disorders such as sickle cell disease and hemophilia and others with more serious childhood cancer problems. With more than 5,000 visits annually, The Melodies Center is a regional health care resource that offers highly specialized and effective care to children and their families in the 25 counties they serve.