VIRTUAL FUN RUN Sunday 9/19 – Saturday 9/25

FAMILY DAY on Sunday 9/26 11am to 3pm

This year there will be another Virtual Fun Run for JP followed by an awesome in person Family Day to close out the week! 

In addition to supporting our efforts to raise awareness for Niemann Pick Type C, your participation and donations will also include a commemorative item and an entry to the Family Day Event where we will be holding the closing celebration and highlighting those who participated and share their Fun Run pictures using JP’s hashtags! #JPsFunRun2021, #RunningforJP2021 #FriendsofHonsingers2021

Current Doorbuster Ticket Prices!: $50 per family (4) $18 per person. All Ticket Holders will receive a Jammin for JP wristband and Raffle Ticket!

Pick Up Wristbands at Will Call Desk. Tickets Also Available at Event.

VIRTUAL FUN RUN

ALL WEEK 9/19 – 9/25

Lace-up your running shoes and complete the 5k race at your convenience anytime between September 19th – September 25th.  You can complete the race in any fashion of your choosing, such as by running through your neighborhood, using a treadmill, or walking!!

Make sure to share your week with us by using our hashtags #JPsFunRun2021, #RunningforJP2021 #FriendsofHonsingers2021

Sharing, using the hashtags, and posting to JP on social media enters you into the running for Special Awards that will be announced at the event!

FAMILY DAY EVENT

September 26th 11am – 3pm

Come visit with JP Honsinger, friends, family, and special guests, at the Family Day Event and help us with our FUNDraiser. All proceeds to be donated to support Niemann Pick Type C Research and the Melodies Center of Albany Medical Center.

ALL DAY

Play, eat, and treat yourself with Carnival Games – Food Trucks – Bounce House – Get a Start on your Holiday Shopping at the Silent Auction and participate in the 50/50 Raffle. Get a Free Picture when you make a donation at the Dylan Bailey Photos, LLC booth!

AT NOON

Enjoy an enchanting reading by Julie Chapman  from her very first book “Witches, Bats & Mystical Cats”. Julie will be on hand all day for book signings!

MIDAFTERNOON

A few words of appreciation from the Honsinger family and announcement of Fun Run Award Winners!

FOLLOWED BY

The music of the Rob Beaulieu Band and a Special Musical Performance by honored guest Madison VanDenburg!

WAYS TO DONATE

• Register via the link below!  
• Send a donation via Venmo @TeamJP-FightNPC 
• Send a donation via PayPal to [email protected]
• Send a check, payable to “Friends of the Honsinger’s” and mail to:  13 Rosemary Court, Clifton Park NY, 12065  

BECOME A SPONSOR

What is Niemann Pick Type C (NPC) Disease?

Niemann Pick Type C (NPC) disease is a rare neurodegenerative disease that primarily strikes children before or during adolescence. NPC is an inherited cholesterol metabolism disorder. Symptoms can include deterioration of memory and balance, lung and liver failure, delayed motor development, and seizures. The disease usually appears in early childhood, leading to neurological problems that there is no cure at this time. This disease is known as childhood Alzheimer’s. While there is not yet a specific treatment for NPC, supportive therapies are available. These include medications to control seizures, abnormal posturing of limbs, and tremors. Physical, speech and occupational therapy are also used to help with daily functioning. 

Get to Know JP’s Story

The Melodies Center for Childhood Cancer and Blood Disorders at the Bernard & Millie Duker Children’s Hospital at Albany Medical Center treats and evaluates a variety of patients, some with blood disorders such as sickle cell disease and hemophilia and others with more serious childhood cancer problems.  With more than 5,000 visits annually, The Melodies Center is a regional health care resource that offers highly specialized and effective care to children and their families in the 25 counties they serve.